Chronic illness · lifestyle · ostomy · Urostomy

Bag changes

I hope those of you that are reading this are keeping safe and well.

I am writing from a urostomy bag user so if you have a colostomy or ileostomy this may differ so please forgive me.

You either choose a one piece or a two piece ostomy pouch/ bag/ appliance. Whichever one works for you. Personally I have only tried a one piece and I’m happy that way. We all are different.

Some like to change everyday this could be because they struggle to get it to last on their skin very long. Some do it as they may have OCD about being super clean. Nothing wrong with that. Then there are others that change 3 -4 days some can go longer. I am a 4 at a push girl.

Mornings are usually better for your bag change as you won’t have drunk or done much moving around throughout the night. Of course mishaps can’t be helped and need to be sorted and cleaned up ASAP.

Some other bits and pieces are needed to help your stoma and also to help the bag stay put…some of these include Elastic tape/ flange extenders, seals / mouldable ring and spray to remove old bag and get rid of excess stickiness.

At night you attach a night bag to your ordinary bag so you don’t need to worry about getting up to empty and can have a more peaceful nights sleep. Some rather get up and empty than have a night bag on. Whatever you feel better doing.


Most of you will know this but those having problems or are going to be getting a urostomy will find this helpful.

Chronic illness · Health · lifestyle · ostomy · Urostomy

Worries about your Ostomy in a crisis

I have been thinking over the past week about how a crisis like we are going through can affect someone who has an ostomy.

Having enough supplies

I don’t know about you but sometimes you have a lot of supplies and then other times it’s a panic to make sure they arrive before you run out.

Well today I made sure that I ordered 3 boxes of  10 urostomy bags to last a few months at least. Those are the main things I worry about not having enough of. Hopefully by this time next week they will be In my hands and I will be able to breath a sigh of relief.

Not being able to go to appointments 

I have an appointment the middle of April with my stoma nurse, and I know that it will most likely be cancelled as it’s not vital I go but it’s to keep an eye on my newly refashioned stoma. My hospital transport is usually run by volunteers so I doubt that will be running either. So I’m hoping my stoma doesn’t change and i don’t need to worry about seeing them.

No space in A and E

I know it’s gone through my head that if all the people who are poorly with this virus are in the emergency departments and other life threatening illnesses or accidents and long waiting times with the 111 service then if your stoma/ kidneys / infection takes a turn then will you be able to be seen at A and E?


If you are having chemotherapy, radiotherapy or any other treatments for cancer, do you fear that you won’t be able to go to have it? It’s such an uncertain time.  I wish you all the best in healing.

We must stay strong and hope that all will be in hand and if we are in need that there will be someone with advice on relevant action to take.

Stay safe my friends 


Chronic illness · Health · lifestyle · ostomy · Urostomy

How to dress well with an ostomy

OK, so not all people with a stoma will need to change the way they dress… Lucky for them. But here’s a few pointd that I’ve thought of.

Comfortable clothes

Having something tight around your tummy even without a stoma is uncomfortable so where possible wear something comfy.

Don’t be afraid to go up a size.

I mean who is going to know apart from you. Cut the labels out if you must but don’t be ashamed to go up a size for the comfort of your stoma and also your bag won’t be so noticeable.

High waisted

I guess depending on where your stoma is located on your tummy, high waisted bottoms will fit you better and your bag will be protected.

Protect your stoma with fitted underwear

Wear them Bridget Jones style knickers but make sure there’s a bit more support in it, as your bag will not pull when it’s filling because the fabric will be aiding it.

Never restrict your flow

please don’t be vain and restrict the flow of your bag. It will cause a lot of problems, including leaking. Your bag is the most important thing after your stoma.

Don’t change your style

The ostomy doesn’t define who you are. Just keep to your original style with a few adaptions mentioned above. If course I’d you want to look different after surgery nobody is stopping you.

Chronic illness · Health · lifestyle · Urostomy

What people don’t see when you have an ostomy

I thought I’d do this in a simple form at some point you’ll be able to relate to all of these and possibly add more on.

So here is what people don’t see when you have an ostomy

The bag or stoma itself

Most of the time your bag and Stoma is hidden away, unless you decide to flash it.

Your warrior scars

These tell a story of how you got to where you are, but most of the time unless you are sunbathing, or in any other situation where your scar on show.

The pain you experience

Most people don’t see the amount of tablets, liquid medicine or injections you have to go through just to try and function normally.

The struggle you’ve endured

This was after my bladder removal last march, behind closed doors nobody could see the sadness. The I have to adapt face.

The umpteen times you’ve needed hospital visit

Unless you publicly tell people on social media of every visit, every treatment and every hospital stay. They won’t know.

How you mentally need to hold it all together

This is me now. Holding it together. With a little bit of anticipation. You wouldn’t know behind my smile I was anxious.