I hope those of you that are reading this are keeping safe and well.
I am writing from a urostomy bag user so if you have a colostomy or ileostomy this may differ so please forgive me.
You either choose a one piece or a two piece ostomy pouch/ bag/ appliance. Whichever one works for you. Personally I have only tried a one piece and I’m happy that way. We all are different.
Some like to change everyday this could be because they struggle to get it to last on their skin very long. Some do it as they may have OCD about being super clean. Nothing wrong with that. Then there are others that change 3 -4 days some can go longer. I am a 4 at a push girl.
Mornings are usually better for your bag change as you won’t have drunk or done much moving around throughout the night. Of course mishaps can’t be helped and need to be sorted and cleaned up ASAP.
Some other bits and pieces are needed to help your stoma and also to help the bag stay put…some of these include Elastic tape/ flange extenders, seals / mouldable ring and spray to remove old bag and get rid of excess stickiness.
At night you attach a night bag to your ordinary bag so you don’t need to worry about getting up to empty and can have a more peaceful nights sleep. Some rather get up and empty than have a night bag on. Whatever you feel better doing.
Most of you will know this but those having problems or are going to be getting a urostomy will find this helpful.
I have been thinking over the past week about how a crisis like we are going through can affect someone who has an ostomy.
Having enough supplies
I don’t know about you but sometimes you have a lot of supplies and then other times it’s a panic to make sure they arrive before you run out.
Well today I made sure that I ordered 3 boxes of 10 urostomy bags to last a few months at least. Those are the main things I worry about not having enough of. Hopefully by this time next week they will be In my hands and I will be able to breath a sigh of relief.
Not being able to go to appointments
I have an appointment the middle of April with my stoma nurse, and I know that it will most likely be cancelled as it’s not vital I go but it’s to keep an eye on my newly refashioned stoma. My hospital transport is usually run by volunteers so I doubt that will be running either. So I’m hoping my stoma doesn’t change and i don’t need to worry about seeing them.
No space in A and E
I know it’s gone through my head that if all the people who are poorly with this virus are in the emergency departments and other life threatening illnesses or accidents and long waiting times with the 111 service then if your stoma/ kidneys / infection takes a turn then will you be able to be seen at A and E?
If you are having chemotherapy, radiotherapy or any other treatments for cancer, do you fear that you won’t be able to go to have it? It’s such an uncertain time. I wish you all the best in healing.
We must stay strong and hope that all will be in hand and if we are in need that there will be someone with advice on relevant action to take.