Chronic illness · Health · lifestyle · ostomy · Uncategorized · Urostomy

HOLLYS GOT A BRAND NEW BAG

We all need somewhere to put our supplies for the next bag change so it’s ready for whenever it’s needed.

I had mine in this bag… it was really unorganised as there wasn’t any compartments but it was all in there and I knew where to find everything.

It wasn’t really working for me… I just had a disposable black bag in there with my next change. I needed to make changing my urostomy bag so easy and having everything to hand.

So after seeing a YouTube video by Hannah Witton talking about what was in her bag and then she showed her lovely bag I was like oh my that looks so organised and stylish at the same time. Everything I wanted.

So I reached out to Beyond Definition and asked if they would be interested in sending me one to review. I was so shocked when they said yes.

This is their Venture bag

You open it up and you think its just like any normal bag….oh no  let me show you so as you can see there’s plenty of compartments on show

Those can be removed with the poppers if you just wanted to use the bag like that or the just the compartments you’d removed to slide into your handbag (if it wasn’t big enough to put this actual bag in)

The bit that blew me away about this bag is the ever so handy built in shelf that was hid away. You can hang it anywhere you can to change your bag and it won’t move.  I mean how cool is that?

This is what I have put inside the bag. 2 dansac convex bags,  Ostopeel blackberry adhesive remover spray, salts barrier wipes, black bags and some half moons just incase the bag didn’t stick as well as I’d like…I use a hairdryer to warm it up normally so don’t need them but if out and about I couldn’t fit a hairdryer in my bag. Ha ha. Oh and of course the dry wipes for when stoma decides to trickle during a change.

That’s the top compartment as you can see it fits in there perfectly.  I just love there’s a space especially for the adhesive remover spray.

At the bottom here you can see i have the black disposable bags, probably about 15 in there.

Hidden underneath quite nicely are the dry wipes. Enough for 2 changes at least if my stoma doesn’t pee mid change

Lastly on the back you get a little zip enough to put a few more wipes and the clip to keep my top up out the way.

So all in all i think this bag is going to get a lot of usage.

Thank you Nick and Jack for gifting me one i am eternally grateful.

If you want to check them out then head on over to http://www.beyonddefinition.co.uk

Chronic illness · Health · lifestyle · ostomy · Urostomy

When your ostomy order arrives

When you first have your ostomy, the stoma nurses in the hospital will set you up with some products and if you’ve never had a supplier for your urinary products they’ll generally set you up with the one the hospital uses. Then once you get home you can decide what company you want to use.

  • Select
  • Charter
  • Bullen
  • Patient choice
  • Fittleworth
  • Amcare

These are to name a few companies that can supply different brands of bags etc. These are in the UK as that’s where I am from.

You need to get all your products out of the box when they come and the leaflet with what they sent. You want to make sure it all matches up and isn’t damaged in any way.

If you haven’t got one already then a storage space or box to put all your supplies in. I have a box and a set of drawers too. It makes it so much easier so you can keep an eye on how much you have left and when you need to order again.

My order usually is as follows

  • Dansac convex bags
  • Single use night drainage bags
  • Salt barrier wipes
  • Ostopeel blackberry adhesive remover spray
  • Dry wipes
  • Black bags

My order is usually once a month and depending on how often I’ve changed the day bag (my dansac) sometimes I have enough for the next month too. I generally change it twice week. I prefer to use single use night bags as it means less infection as its a fresh one every night. I have a box of salts and two sprays which will last longer than the month.

If you need to cut your bags then do this as soon after they arrive incase you need to use them when the others have ran out. I’m lucky my supplier cuts mine to template. This I’m eternally grateful as I would make a total hash of it otherwise.

Keep a note of when your supplies arrived so you know when to order again. Sometimes your supplier will have their own system and will phone you to see what you require. I have to phone my Dr’s to get them to send the prescription. All Dr’s surgeries are different.

Once you are settled with your stoma and have tried different products you will hopefully have the ones that that are perfect for you. Trust me I’ve been through some products that just haven’t suited me.

I hope you found this an interesting read

Chronic illness · lifestyle · ostomy · Urostomy

Bag changes

I hope those of you that are reading this are keeping safe and well.

I am writing from a urostomy bag user so if you have a colostomy or ileostomy this may differ so please forgive me.

You either choose a one piece or a two piece ostomy pouch/ bag/ appliance. Whichever one works for you. Personally I have only tried a one piece and I’m happy that way. We all are different.

Some like to change everyday this could be because they struggle to get it to last on their skin very long. Some do it as they may have OCD about being super clean. Nothing wrong with that. Then there are others that change 3 -4 days some can go longer. I am a 4 at a push girl.

Mornings are usually better for your bag change as you won’t have drunk or done much moving around throughout the night. Of course mishaps can’t be helped and need to be sorted and cleaned up ASAP.

Some other bits and pieces are needed to help your stoma and also to help the bag stay put…some of these include Elastic tape/ flange extenders, seals / mouldable ring and spray to remove old bag and get rid of excess stickiness.

At night you attach a night bag to your ordinary bag so you don’t need to worry about getting up to empty and can have a more peaceful nights sleep. Some rather get up and empty than have a night bag on. Whatever you feel better doing.

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Most of you will know this but those having problems or are going to be getting a urostomy will find this helpful.

Chronic illness · Health · lifestyle · ostomy · Urostomy

Worries about your Ostomy in a crisis

I have been thinking over the past week about how a crisis like we are going through can affect someone who has an ostomy.

Having enough supplies

I don’t know about you but sometimes you have a lot of supplies and then other times it’s a panic to make sure they arrive before you run out.

Well today I made sure that I ordered 3 boxes of  10 urostomy bags to last a few months at least. Those are the main things I worry about not having enough of. Hopefully by this time next week they will be In my hands and I will be able to breath a sigh of relief.

Not being able to go to appointments 

I have an appointment the middle of April with my stoma nurse, and I know that it will most likely be cancelled as it’s not vital I go but it’s to keep an eye on my newly refashioned stoma. My hospital transport is usually run by volunteers so I doubt that will be running either. So I’m hoping my stoma doesn’t change and i don’t need to worry about seeing them.

No space in A and E

I know it’s gone through my head that if all the people who are poorly with this virus are in the emergency departments and other life threatening illnesses or accidents and long waiting times with the 111 service then if your stoma/ kidneys / infection takes a turn then will you be able to be seen at A and E?

Treatments

If you are having chemotherapy, radiotherapy or any other treatments for cancer, do you fear that you won’t be able to go to have it? It’s such an uncertain time.  I wish you all the best in healing.

We must stay strong and hope that all will be in hand and if we are in need that there will be someone with advice on relevant action to take.

Stay safe my friends 

 

Chronic illness · Health · lifestyle · ostomy · Urostomy

How to dress well with an ostomy

OK, so not all people with a stoma will need to change the way they dress… Lucky for them. But here’s a few pointd that I’ve thought of.

Comfortable clothes

Having something tight around your tummy even without a stoma is uncomfortable so where possible wear something comfy.

Don’t be afraid to go up a size.

I mean who is going to know apart from you. Cut the labels out if you must but don’t be ashamed to go up a size for the comfort of your stoma and also your bag won’t be so noticeable.

High waisted

I guess depending on where your stoma is located on your tummy, high waisted bottoms will fit you better and your bag will be protected.

Protect your stoma with fitted underwear

Wear them Bridget Jones style knickers but make sure there’s a bit more support in it, as your bag will not pull when it’s filling because the fabric will be aiding it.

Never restrict your flow

please don’t be vain and restrict the flow of your bag. It will cause a lot of problems, including leaking. Your bag is the most important thing after your stoma.

Don’t change your style

The ostomy doesn’t define who you are. Just keep to your original style with a few adaptions mentioned above. If course I’d you want to look different after surgery nobody is stopping you.